Εξετάζοντας την ποιότητα ζωής των ατόμων που πάσχουν απο χρόνια ψυχική διαταραχή : Μια εμπειρική έρευνα

Part of : Επιθεώρηση κοινωνικών ερευνών ; Vol.142, 2014, pages 123-150

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Pages:
123-150
Section Title:
Articles
Author:
Abstract:
Quality of life (QOL) is a matter of concern for people who are diagnosed with persistent mental distress. This paper presents the qualitative findings of a PhD project, which examined the QOL perceptions of 44 adults diagnosed with schizophrenia, manic depressive disorder or compulsive depressive disorder, who attended two Community Mental Health Centres, in Athens. The study employed a combined method using two standardized QOL instruments and 22 semi-structured interviews. Qualitative outcomes indicated that the participants’ representations of their care environments were positive, they participated in decisions regarding their medical treatment and their involvement in the MHCs had a positive impact on their social and intimate relationships. In terms of personal meaning of QOL, participants referred to objective QOL indicators, and further to a number of internal standards related to creativity and personal growth.
Subject:
Subject (LC):
Keywords:
quality of life, mental distress, methodological triangulation, community mental health centres., ποιότητα ζωής, ψυχική διαταραχή, μεθοδολογική τριγωνοποίηση, κέντρα κοινοτικής ψυχικής υγείας
Notes:
Ευχαριστώ θερμά τους επόπτες της έρευνας Dr. T.D.Cockburn και Dr. C.A.Dearnley για τη συνεχή τους υποστήριξη σε όλη τη διάρκεια της εκπόνησης της μελέτης. Επίσης, ευχαριστώ τους Δρ. Ρ. Γουρνέλλη και Δρ. K. Kατάν, για την πολύτιμη βοήθεια στην επιλογή των συμμετεχόντων, καθώς και όλους τους χρήστες των υπηρεσιών που δέχτηκαν να παραχωρήσουν χρόνο για να γίνουν οι συνεντεύξεις. Τέλος, θερμές ευχαριστίες στον συνάδελφο ψυχολόγο κ. Κρίτωνα Ορφανό, για τις χρήσιμες επισημάνσεις του κατά την αναθεώρηση του άρθρου.
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References (1):
  1. Γυφτάκη Ε., Κακογιάννη Μ., 2005, «Απόψεις των ενοίκων/ασθενών για την έννοια της ψυχιατρικής αποκατάστασης», Τετράδια Ψυχιατρικής, 89, Αθήνα, σ. 31-38. Eυαγγέλου Ε., 2013, «Η χρήση της μεθοδολογικής τριγωνοποίησης στην έρευνα της ποιότητας ζωής των ψυχικά πασχόντων που ζουν στην κοινότητα», e-Περιοδικό Επιστήμης και Τεχνολογίας, 2(9), Αθήνα, σ. 113-119. Ιωσηφίδης, Θ., 2008, Ποιοτικές Μέθοδοι έρευνας στις κοινωνικές επιστήμες, Αθήνα, Κριτική. Κανδυλάκη, Α., 2010, «Η ποιοτική έρευνα σε “ευαίσθητα ζητήματα” στο πεδίο της Κοινωνικής Εργασίας», στο Καλλινικάκη Θ. (επιμ.), Ποιοτικές μέθοδοι στην έρευνα της Κοινωνικής Εργασίας, Αθήνα, Τόπος, σ. 83-100. Κυριαζή, Ν., 2011, Η κοινωνιολογική έρευνα, Αθήνα, Πεδίο. Μαργαρίτη Μ., Δασκαλοπούλου Ε., Κόλλιας Κ., Σταμούλη Σ., Γουρνέλλης Ρ., Κοκκώση Μ., Πλουμπίδης, 2002, «Παρακολούθηση και εκτίμηση της κλινικής πορείας των μελών του προγράμματος. Σχεδιασμός, αρχικά αποτελέσματα», στο Χριστοδούλου Γ.Ν., Τομαράς Βλ. Δ., Οικονόμου Μ.Π. (επιμ.), Από το Ψυχιατρείο στην Κοινότητα, Αθήνα, Βήτα, σ. 151-165. Oικονόμου Μ., Κοκκώση Μ., Τριανταφύλλου Ε., Χριστοδούλου Γ., 2001, «Ποιότητα ζωής και ψυχική υγεία. Εννοιολογικές προσεγγίσεις, κλινικές εφαρμογές και αξιολόγηση», Αρχεία Ελληνικής Ιατρικής, 18(3), σ. 239-253. Οικονόμου Μ., Γιώτης Λ., Στεφανής Κ, 2006, «Στίγμα και ψυχική ασθένεια», Ψυχολογία, 13(3), Αθήνα, σ. 28-43. Mason J., 2003, H διεξαγωγή της ποιοτικής έρευνας, μτφ.: Ελένη Δημητριάδου, Αθήνα, Ελληνικά Γράμματα. Robson C., 2007, Η έρευνα του πραγματικού κόσμου, μτφ.: Β. Νταλάκου, Κ. Βασιλικού, Αθήνα, Gutenberg. Σακαλάκη Μ., 2008, «Η ανάλυση περιεχομένου», στο Παπαστάμου Σ. (επιμ.) Εισαγωγή στην Κοινωνική Ψυχολογία. Επιστημολογικοί προβληματισμοί & μεθοδολογικές κατευθύνσεις, Α΄ Αθήνα, Πεδίο, σ. 473-490. Τζινιέρη-Κοκκώση Ε., Τριανταφύλλου Β., 2003, Εγχειρίδιο ποιότητας ζωής με άξονα το ερωτηματολόγιο WHOQOL-100, Αθήνα, Βήτα. Albercht G., Devlieger P., 1999, «The disability paradox: High quality of life against all odds», Social Sciences Medicine, 48(8), pp. 977-988. Angermeyer M.C., Holzinger A., Kilian R., Matschinger H., 2001, «Quality of life as define by schizophrenic patients and psychiatrists», International Journal of Social Psychiatry, 47 (2), pp. 34-42. Assalian P., Fraser R., Tempier R., Cohen D., 2000, «Sexuality and quality of life of patients with schizophrenia», International Journal of Psychiatry in Clinical Practice, 4, pp. 29-33. Ashatu H., 2009, «The use of Triangulation in Social Sciences Research. Can qualitative & quantitative methods be combined?», Journal of Comparative Social Work, 1, pp. 1-12. Baker F., Intagliata J., 1982, «Quality of Life in the evaluation of community support systems», Evaluation and Programme Planning, 5, pp. 69-75. Barbato A., Bajoni A., Rapisarda F., Anza V., 2014, «Quality Assessment of Mental Health Care by People with Severe Mental Disorders: A Participatory Research Project», Community Mental Health Journal, 50 (4), pp. 402-408. Barry M., Zissi A., 1997, «Quality of life as an outcome measure in evaluating mental health services: a review of the empirical evidence», Social Psychiatric Epidemiology, 32, pp. 38-47. Braun V., Clarke V., 2006, «Using thematic Analysis in Psychology», Qualitative Research in Psychology, 3 (2), pp. 77-101. Bryman A., 2006, «Integrading quantitative and qualitative research: How is it done?», Qualitative research, 6 (1), pp. 97-113. Calman K.C., 1984, «Quality of life in cancer patients a hypothesis», Journal of Medical Ethics, 10, pp. 124-127. Chamberlin J., 1997, «A working Definition of empowerment», Psychiatric Rehabilitation Journal, 20 (4), pp. 43-6. Connel J., Brazier J., O’Cathain A., Lloyd-Jones M., Paisley S., 2012, «Quality of life of people with mental health problems: a synthesis of qualitative research», Health and Quality of Life Outcomes, 10, 138. Corring D.J., Cook J.V., 2007, «Use of qualitative methods to explore the quality of life construct from a consumer perspective», Psychiatric Services, 58, pp. 240-244. Day H., Jankey S.G., 1996, «Lessons from the literature: toward a holistic model of quality of life», in Renwick R., Brown I., Nagler M. (ed.), Quality of life in Health Promotion and Rehabilitation, Conceptual Approaches, London, Sage, pp. 39-50. Evangelou E., 2007, «Examining the quality of life life of young adults with chronic mental disorder, an empirical study in two Mental Health Centres in Athens» PhD, Bradford University, UK. Available at: http://www.ekt.gr Εvangelou E., 2013, «Examining the quality of life of adults of mental distress: A qualitative study of in two Community Mental Health Centres in Athens». Psychology of Women Section Review, 15(1), pp. 27-37. Fawcett B., 2000, «Researching disability: meanings, interpretations and analysis», in B. Fawcett, B. Featherstone, J. Fook & A. Rossiter (eds), Practice Research in Social Work. Postmodern Feminist Perspectives, Routledge. Ηansson L, 2006, «Determinants of quality of life in people with severe mental illness», Acta Psychiatrica Scandinavica Supplement 113 (429), pp. 46-50. Helberg L., Skarsater I., 2009, «The importance of health for persons with psychiatric disabilities», Journal of Psychiatric Mental Health Nursing, 16, pp. 455-461. Laliberte-Rudman D., Yu B., Scott E., (2000), «Exploration of the perspectives of persons with schizophrenia regarding quality of life», American Journal of Occupational Therapy, 54, pp. 137-147. Lehman A., 1983, «The well being of Chronic Mental patients, Assessing their quality of life», Archives of General Psychiatry, 40, pp. 369-373. Lowes L., Prowse M.A., 2001, «Standing outside the interview process. The illusion of objectivity in phenomenological data generation», International Journal of Nursing Studies, 38(4), pp. 471-480. Marquis R., Jackson R., 2000, «Quality of Life and Quality of Service Relationships: experiences of people with disabilities», Disability and Society, 15(3), pp. 411-425. Marlow C.R., 2001, Research methods for generalist social work (3rd ed), United States, Books/ Cole. McCann E., 2000, «The expression of sexuality in people with psychosis: Breaking the taboos», Journal of Advanced Nursing, 32(1), pp. 132-138. Maj M., 2004, «Beliefs of psychiatric nurses about schizophrenia: a comparison with patients’ relatives and psychiatrists», International Journal of Social Psychiatry, 50 (4), pp. 319-330. Michalak E.E., Yatham L.N., Kolesar S., 2006, «Biopolar disorder and quality of life: a patientcentered approach», Quality of Life Research, 15, pp. 25-37. Morse J.M., 1991, «Approaches to Qualitative–Quantitative Methodological Triangulation», Nursing Research, 40 (1), pp. 120-123. Oliver J.P., 1991, «The social care directive: development of a quality of life profile for use in community services for the mentally ill», Social Work and Social Sciences Review, 3(1), pp. 5-45. Οliver J.P., Huxley P., Bridges K., Mohamad H., 1996, Quality of Life and Mental Health Services, London, Routledge. Orley J., Kuyken W., 1994, Quality of life assessment. International perspectives, Heidelberf, Germany, Springer-Verlag. Phillips D., 2006, Quality of life: concept, policy & practice, London, Routledge. Priebe S., Oliver J.P.J., Kaiser W., 1999, Quality of life and mental health care, Wrightson, Petersfield. Renwick R., Brown I., Nagler M., 1996, Quality of life in Health Promotion and Rehabilitation, Conceptual Approaches, London, Sage. Rapley M., 2003, Quality of life research a critical introduction, London, Sage. Repper J., 2000, «Adjusting the focus of mental health nursing: Incorporating service users’ experiences of recovery», Journal of Mental Health, 9(6), pp. 575-587. Russner M., Carisson G., Brunt D., Nystrom M., 2010, «A dependence that empowers-the meaning of the conditions that enable a good life with bipolar disorder», International Journal of Qualitative Studies on Health and Well-Being, 5(1), 10.3402/qhw.v5i1.4653. Silverman D., 2005, Interpreting qualitative data: methods, for analyzing talk, text and interaction (2nd ed), London, Sage. Van Nieuwenhuizen C., Schene A.H., Boevink W.A., Wolf J., 2011, «Measuring the quality of life of clients with severe mental illness: a review of instruments», Psychiatric Rehabilitation Journal, 4, pp. 33-42. Westerhof G.J., Dittmann-Kohli F., Thissen T., 2001, «Beyond life satisfaction: Lay conceptions of well-being among middle aged and elderly adults», Social Indicators Research, 56 (2), pp. 179-203. WHOQOL Group, 1993, Study Protocol: Division of Mental Health, Geneva, WHΟ WHO, 2010, Gender, women and primary health care renewal, Geneva, WHO. Zissi A., 1997, «From Leros asylum to community-based hostels: quality of life, levels of functioning and the care process among psychiatric residents in Greece», PhD thesis, Birmingham, 48-7049.